The Chronic Disease Coalition is a nonprofit organization dedicated to protecting the rights of chronic disease patients against discriminatory policies and practices.
The Coalition was founded in 2015 and has since worked to advocate for people living with long-term or lifelong health conditions such as diabetes, kidney disease, MS, psoriasis, cancer and other chronic diseases.
We are patients, family members, health care providers, advocacy groups, medical professionals and others who care deeply about the needs of the millions of Americans with chronic diseases.
Raise public awareness of issues affecting people with chronic diseases.
Expose and advocate against discrimination.
Enable supporters to take action when help is needed to protect patients’ rights.
Appointed executive director of the Chronic Disease Coalition in 2016, Scott brings decades of personal experience and chronic disease advocacy to the CDC’s mission of protecting patients’ rights.
Scott has had Type 1 diabetes for 35 years, has had rheumatoid arthritis for nearly 20 years and is a cancer survivor. His professional background includes service as an elected state legislator where he was heavily engaged in health care legislation and committee work.
Today, in addition to his duties with the CDC, Scott is also a communications professional based in Portland, Oregon.
Lindsey joined the Chronic Disease Coalition in early 2017 as the digital advocacy director. Her background in outreach and communications helps her successfully connect and develop relationships with patients and their families. Lindsey believes grassroots advocacy is essential to raising awareness about the 133 million Americans who live with chronic diseases.
Contact Lindsey at [email protected]
Kara Hansen joined the Chronic Disease Coalition in late 2015 and became assistant director in early 2016.
As assistant director of the Coalition, she interacts with community partners and individual members, assists with government affairs and oversees website content and media relations.
Her professional background includes a decade working as a print journalist in the Pacific Northwest followed by several years as an account executive at a communications firm in Portland, Oregon. She also dedicates time to volunteering, a commitment that began in her youth, when she served as a peer educator for the Cascade AIDS Project, and currently includes working on a steering committee for a gratitude-oriented 501c(3) nonprofit organization in Portland.
Contact Kara at [email protected]
Samantha Siegner joined the Chronic Disease Coalition in summer of 2017 as the partnerships director.
Her background in communications and grassroots community building helps her to connect with patients, organizations and groups to develop partnerships and advocate for patients’ rights. Having seen family and friends suffer from chronic diseases, Samantha believes education and advocacy are crucial to helping change the way those with chronic diseases are viewed and treated.
Contact Samantha at [email protected]