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Three ways you can protect chronic illness patients from discrimination by insurance companies


Chronic disease or chronic illness can mean many things, including conditions ranging from diabetes, arthritis, MS and psoriasis to cancer and kidney disease, to rare diseases such as Guillain-Barre and chronic inflammatory syndromes, among others.

We know discrimination based on chronic conditions is on the rise, as more and more health insurance companies look for ways […]

May 2nd, 2016|Advocacy, Health News|

Five resources for becoming a chronic disease patient advocate


Becoming involved in advocacy is a great way for chronic disease patients to take charge of chronic health conditions and to help others in the process. With the vast array of issues that patients have to deal with, it can be difficult to know where exactly to start. Following are five tips for kick-starting your […]

April 29th, 2016|Advocacy|

Patient Advocate Spotlight: Nanette Reid


Chronic diseases take many forms – some of which are readily apparent; however, many more are hidden. Despite the visibility or lack thereof, all chronic conditions create an unthinkable hardship. Multiple sclerosis (MS) is just one example of a chronic disease that is not always visible to the family, friends, co-workers and acquaintances of individuals […]

April 27th, 2016|Advocacy, Patients' Stories|

Dialysis Patient Citizens and American Kidney Fund explain why premium assistance bans discriminate against patients


Jackson Williams and Deborah Darcy, government affairs directors of Dialysis Patient Citizens and the American Kidney Fund, recently spoke to the National Association of Insurance Commissioners on the importance of charitable assistance for insurance premiums.

They addressed the association, made up of the chief health insurance regulators from each of the fifty states, at its annual […]

April 22nd, 2016|Advocacy, Health News|

Idaho woman can’t get health insurance or Medicaid and other top news stories


The Idaho Statesman continues to shed light on cases in Idaho where the people who need health care the most aren’t able to get it because of insurance and coverage problems.

Brittany Long of Twin Falls is 25 years old and has a neurological condition called a Chiari malformation. She needs surgery to treat the condition, […]

April 18th, 2016|Health News|

Chronic Disease Coalition to discuss discrimination by health insurers on KISU radio program this week


Chronic Disease Coalition Executive Director Scott Bruun will appear on “House Call,” a weekly medical call-in radio program hosted by Doctors Fahim and Naeem Rahim of the Idaho Kidney Institute, on NPR affiliate KISU this Thursday morning.

The topic of the show is “Health Insurance is like a hospital gown. You think you are covered, but […]

April 13th, 2016|Advocacy, Coalition Updates|

Chronic Disease Coalition advocates for Americans with diabetes in D.C.


Chronic Disease Coalition Executive Director Scott Bruun was honored to attend and actively participate in the American Diabetes Association’s “Day at the Capitol” last week.

The cost of diabetes in human terms is staggering. Today in America, more than thirty million people suffer from diabetes. Another ninety million Americans have “pre-diabetes.” Diabetes kills more Americans every […]

April 11th, 2016|Advocacy, Coalition Updates|

Wanted: A prescription for health equity


April marks the observance of National Minority Health Month, underscoring efforts to accelerate health equity in the United States.

The U.S. Department of Health and Human Services, which sponsors National Minority Health Month, is the nation’s lead agency for improving the health of racial and ethnic minorities through policies and programs to stem health disparities.

While great […]

April 8th, 2016|Advocacy|

Urge Idaho leaders to step in to protect chronically ill patients


As patients continue to come forward in Idaho to put the spotlight on how insurance companies are discriminating against them based on chronic conditions, the American Kidney Fund is taking a stand and urging Gov. Butch Otter to “step in to ensure Idaho’s most vulnerable, chronically ill individuals can rely on charitable assistance to maintain […]

April 6th, 2016|Advocacy, Health News|

Patient Advocate Spotlight: Sarah Truman


Sarah Truman moved to Portland, Oregon, in 2011 hoping to find better health care. In the years prior, doctors had diagnosed her with psoriatic arthritis, followed by fibromyalgia and a hypothyroid condition as well. These conditions eventually led to her contracting autoimmune hepatitis.

Managing health problems such as these requires a costly and involved treatment regimen.

Having […]

April 4th, 2016|Advocacy, Patients' Stories|