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Eight amazing advocates for people with chronic diseases


Last year, the Chronic Disease Coalition highlighted five outstanding health care advocates for their efforts to raise awareness and ensure patients’ voices are heard. Many more people have spoken up in the months since. Following are eight stories of patients who are making a difference for themselves and others.

1. Lauren Cephus: Advocating for kidney patients […]

April 26th, 2017|Advocacy, Health News, Patients' Stories|

UnitedHealthcare takes action to increase live kidney donation


As the need for donated kidneys continues to rise in the United States, at least one health insurance company has stepped up to help meet that tremendous need.

When UnitedHealthcare announced that it will cover travel and lodging expenses for kidney donors, it came as welcome news to kidney patients. Starting in 2017, UnitedHealthcare pledged to […]

April 25th, 2017|Health News|

3 ways that SB 349 hurts California’s kidney patients


California resident Carl Riddle relies on getting dialysis treatment at night. The treatment filters toxins out of his blood because his kidneys can’t. With hundreds of thousands of Americans suffering from kidney failure, many rely on dialysis to survive, and nocturnal service is something that allows many – including Riddle – to keep working during […]

April 20th, 2017|Action Alerts, Advocacy, Health News|

Should health insurers be allowed to make patients ‘fail first’ on the wrong drugs?


Chronic disease patients in Texas are speaking out in support of bills that would help to protect Texans against the harmful practice of step therapy.

Step therapy is a requirement, set by health insurers, for patients to try a cheaper drug than their doctor first recommends and to fail on that cheaper medication before they’re allowed […]

April 18th, 2017|Health News|

Calls for holding insurance companies accountable after Florida man denied coverage for cancer treatment


When doctors discovered a tumor on Brett Nyquist’s brain a few days before Christmas in 2014, the 32-year-old knew he was in for a tough time. What he didn’t expect was that his insurance company, Florida Blue, would deny coverage of the treatment recommended by his doctors at the Mayo Clinic.

According to an article in […]

April 17th, 2017|Health News|

Patient Advocate Spotlight: Lisa Clifford


Born with one kidney, Lisa Clifford has struggled with chronic kidney disease her entire life, but it wasn’t until August 2015 that she was diagnosed with kidney failure.

Once she started dialysis treatment twice a day, Clifford could no longer work, forcing her to quit her job at the United States Department of Education – a […]

April 13th, 2017|Advocacy, Patients' Stories|

Five articles you need to read about live kidney donation


April is National Donate Life Month, a time to raise awareness on the importance of organ donation, encourage people to register to become donors and celebrate individuals who have already given the gift of life.

Beyond saving lives, organ donors help patients return to their former lifestyles and often allow them to become less dependent on […]

April 10th, 2017|Advocacy, Health News|

Bill strengthening patient protections advances in Florida


Patient rights scored a win when Senate Bill 530 in Florida passed unanimously in a recent Senate committee hearing.

The bill will strengthen and expand patient protections when it comes to health insurance companies’ “fail first” requirements. Fail first policies, also called step therapy, are insurance policies that require patients to try a cheaper drug than […]

April 7th, 2017|Coalition Updates, Health News|

‘Going in Style’ brings kidney disease awareness to a movie theater near you


Asking a loved one or friend to consider being tested to become a donor is just one of the myriad challenges faced by someone with kidney failure.

To help promote awareness of the importance of living donors, Zach Braff, director of the upcoming film “Going in Style,” has lent his voice to a campaign for the […]

April 4th, 2017|Health News|

States take action to prevent health insurers’ discriminatory practices


As insurance companies look for new and creative ways to maximize profits at the expense of patients, state legislatures are taking action to protect patients’ rights.

A discriminatory practice that enables health insurers to save money and provide less care to patients, step therapy forces patients to try and fail cheaper treatments before they are offered […]

March 30th, 2017|Advocacy, Health News|