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A win for kidney patients who rely on financial aid in Pennsylvania


Low-income kidney disease patients in Pennsylvania scored a win recently when Independence Blue Cross agreed – at least temporarily – to allow them to continue receiving financial assistance from a nonprofit without getting dropped from their health plans.

Blue Cross had previously been rejecting patients who relied on help paying for their insurance payments from the […]

August 15th, 2017|Health News|

Guest author Jim Gleason discusses living an optimistic life in the face of chronic health conditions


Many years ago, October 1994 to be specific, I faced the decision of life over death. With an incurable condition of a failing heart, my only option to stay alive was to undergo a heart transplant. I didn’t realize it at the time, but getting a new heart is often characterized as trading one chronic […]

August 10th, 2017|Patients' Stories|

National Psoriasis Awareness Month: Three Psoriatic ‘Psuperheroes’


An estimated 7.5 million people throughout the United States live with psoriasis, a chronic condition that causes cells to build rapidly on the surface of skin, creating scaly or red patches that can be itchy and painful. The disease can also lead to psoriatic arthritis, which causes stiffness and pain in and around the joints.

August […]

August 8th, 2017|Health News|

10 truths about chronic disease patient assistance programs


As many as 117 million people in the United States – that’s half of all adults – have a chronic disease or condition such as heart disease, diabetes, cancer or arthritis, according to the Centers for Disease Control and Prevention.

Given the likely expense of covering treatment needed to manage and prevent progression of these diseases, […]

August 2nd, 2017|Health News|

Patient Advocate Spotlight: Mandi Meyer


Thursday’s Patient Spotlight highlighted Adam Meyer, who suffers from Gaucher’s disease. Adam’s mother, Mandi, was also able to speak with us about raising a son with a chronic condition.

When Mandi learned that doctors had diagnosed Adam with Gaucher’s disease in 1982, she learned as much about the disease as she could. At the time, there were […]

August 1st, 2017|Patients' Stories|

Patient Advocate Spotlight: Adam Meyer


Adam Meyer was born in Johannesburg, South Africa. When Meyer was 18 months old, doctors discovered he had an enlarged liver, an enlarged spleen and an abnormal blood count.

Meyer’s doctors were at a loss – could it be cancer? Leukemia? Meyer was eventually diagnosed in 1981 with a rare disease, Gaucher’s disease.

Gaucher’s disease (pronounced go-SHAY) […]

July 27th, 2017|Patients' Stories|

Patient advocacy groups send joint letter calling for step therapy reform


The Chronic Disease Coalition is among more than 20 patient groups who recently signed and sent a joint letter to U.S. Rep. Brad Wenstrup of Ohio and U.S. Rep. Raul Ruiz of California supporting their efforts to enact meaningful patient-first reform surrounding “step therapy,” a harmful practice by insurers.

Step therapy occurs when health insurance companies […]

July 25th, 2017|Advocacy, Coalition Updates|

Four times health insurers wrongfully denied patients with chronic diseases


Insurance companies looking to increase their profit margins are finding new ways to wrongfully block patients with chronic health issues from accessing the medical care they need.

Here are four recent examples of health insurers discriminating against people by creating barriers to care based on their specific disease.

1. In Texas, a mother recently described how insurance […]

July 20th, 2017|Health News|

Patient Advocate Spotlight: Amber Rose Dullea


Health coach, author, advocate, support group leader and aspiring radio show host are just a few of the words that describe Amber Rose Dullea, who has master’s degrees in Arts and Divinity. But were it not for a fateful life event, Dullea would not be on the meaningful career path that she is today.

In December […]

July 19th, 2017|Patients' Stories|

Chronic Disease Coalition announces partnership with The Mighty to help advocate for people with chronic health conditions


The Chronic Disease Coalition has formed a partnership with The Mighty, a story-based health community focused on improving the lives of people facing disease, disorders, mental illness and disabilities.

More than half of Americans face serious health conditions or medical issues. An estimated 133 million Americans live with at least one chronic disease or condition. They […]

July 18th, 2017|Coalition Updates, Health News|